Open Access
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Systems Change
Open Access
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Open Access
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System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency
Clinical Research
Open Access
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Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study
Open Access
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Diagnostic performance of point-of-care ultrasonography (POC-US) in haemophilia joint health: a comparative study with MRI
Open Access
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Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis
Open Access
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Development of a patient-reported outcomes tool to monitor changes in joint health and wellbeing for young people with haemophilia B
Open Access
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Community Voices in Research (CVR): A lived experience expert-centred approach to advance the future of inheritable bleeding disorders
Nurse Focus
Open Access
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Living, Caring, Learning - Thinking outside the box to solve care challenges in a rare blood disorder
Open Access
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Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir
Open Access
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Living, Caring, Learning - Building family relationships in haemophilia care
Open Access
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Editorial – Living, Caring, Learning: The nurse-patient relationship in bleeding disorders care
Open Access
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Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate
Open Access
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Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia
Open Access
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Living, Caring, Learning – Collaborating across borders to support a haemophilia patient with a rare complication
Open Access
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Living, Caring, Learning – Setting boundaries for the wellbeing of everyone in bleeding disorders care
Case Study
Clinical Practice
Open Access
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A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board
Open Access
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CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia
Open Access
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