Skip to main navigation menu Skip to main content Skip to site footer

Admin menu

Volume 11 (2024): Issue 1

Living, Caring, Learning – Setting boundaries for the wellbeing of everyone in bleeding disorders care

Abstract

Abstract

Cathy, a haemophilia nurse specialist in the UK, reflects on a challenging patient with a rare inherited platelet disorder. The patient did not attend regular clinic appointments, and when presenting at clinic due to severe bleeding or feeling unwell was often aggressive and abusive towards staff. The care team were concerned that he was putting his health at risk and followed protocols for vulnerable adults to try and ensure he was accessing the care he needed. This involved bringing in expertise outside of the multidisciplinary team (MDT), including non-medical services. Steps were also taken to ensure staff safety and wellbeing through in-house psychological support and the agreement of strategies for dealing with difficult behaviour. Ultimately, it was necessary to find an alternative care pathway for the patient. While acknowledging her disappointment in this outcome, Cathy reflects on how the processes followed have reinforced the development of individualised care plans for all patients with complex needs, and the importance of access to specialist services beyond the MDT. She also highlights considerations around the safety and wellbeing of the care team, the role of discussion and ‘debriefing’, and the value of staff access to psychological support.

Article

View Full Article

References

  • 1. Hamilton L. The Boundary Seesaw Model: good fences make for good neighbours. In: Tennant A, Howells K, eds. Using Time, Not Doing Time: Practitioner Perspectives on Personality Disorder and Risk. 2010. John Wiley and Sons. doi: 10.1002/9780470710647.ch13.
  • 2. Shapiro S, Makris M. Haemophilia and ageing. Br J Haematol 2018; 184(5): 712-720. doi: 10.1111/bjh.15475.
  • 3. Smith N, Bartholomew C, Jackson S. Issues in the ageing individual with haemophilia and other inherited bleeding disorders: understanding and responding to the patients’ perspective. Haemophilia 2013; 20(1): e1-e6. doi: 10.1111/hae/12278.

PDF Download

Download PDF

Open in full-page viewer

Authors

  • Cathy Harrison

    ORCID iD
    CATHY HARRISON is an Advanced Nurse Practitioner in Haemophilia & Associated Haemostasis Disorders at Sheffield Haemophilia & Thrombosis Centre, UK. She was Vice Chair of the World Federation of Hemophilia (WFH) Nurses Committee and became Chair following the WFH 2024 World Congress, Sheffield, UK