Open Access | Jul 2023 Access equity: key questions and challenges - A report from the 1st workshop of the European Haemophilia Consortium (EHC) Think Tank Workstream on Access Equity Naja Skouw-Rasmussen Laura Savini
Open Access | Feb 2023 Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency Amanda Bok Declan Noone Naja Skouw-Rasmussen
Open Access | Dec 2023 Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways Zita Gacser Naja Skouw-Rasmussen Steven Bourke Renske ten Ham Dalma Hosszú
Open Access | Aug 2023 Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways Naja Skouw-Rasmussen Laura Savini
Open Access | Dec 2023 A multidisciplinary approach to optimising the virtual management of haemophilia: a roundtable meeting of UK experts Gary Benson Trupti Bhandari Keith Gomez Kerry-Ann Holder David Stephensen Alice Wilkinson Sarah Mangles
Open Access | Dec 2023 Recognising the importance of the research nurse and study coordinators in enhancing retention of people with haemophilia in clinical trials Kate Khair Hanne Thykjaer Tami Barazani-Brutman Kelly Bellm Christopher Benjamin Cindy Wakefield Nicola Williams Pakawan Wongwerawattanakoon Huiqun Zhong Greta Mulders
Open Access | Aug 2023 Shared decision-making for gene therapy in haemophilia care Simon Fletcher Kathryn Jenner Kate Khair
Open Access | Jul 2023 Pain assessment and management in the Moroccan haemophilia population: a prospective descriptive study Sofia Sraidi Sara Naim Mouna Lamchahab Siham Cherkaoui Meryem Qachouh Mohamed Rachid Abdellah Madani Nissrine Khoubila
Open Access | Oct 2023 Psychological experiences of mothers of children with severe haemophilia in Iranian culture: A phenomenological study Fatemeh Feizi Ali Eshghi Manijeh Firoozi Zeinab Shormeij Behnaz Habib Panah Peyman Eshghi Javad Alaghband Rad
Open Access | Feb 2023 Clinical and radiological assessment of joints in people with haemophilia in Assam, Northeast India: a cross-sectional study Bhabani Sankar Dhal Anupam Dutta Arijit Das Dhrubajyoti Borpatragohain Adity Sharma Arnav Kashyap
Open Access | Dec 2023 Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study Agnes Kisakye Phillip Gitah Kasirye Dan Muramuzi Daniel Opuch Joan Nampiima Grace Ndeezi Adoke Yeka Horatiu Vultur
Open Access | Aug 2023 Management of a patient with factor X deficiency with FEIBA: a case report Luish Borboruah Anupam Dutta
Open Access | Oct 2023 A creative approach to managing a case of haemophilia A with inhibitors in a low-resource country: case report Simran Bhatia M V Archana Vasudeva Bhat Ganesh M Balthillya Sulochana Badagabettu
Open Access | Oct 2023 The first reported case of factor X deficiency in a Filipino child – case study Kristian Dorell Masacupan Allan Robert Racho Maria Luz Del Rosario Loralyn Mae Lagara-Aranas
Open Access | May 2023 The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier Keiko Nozaki Akemi Yamazaki
Open Access | Apr 2023 The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence Sally-Anne Wherry Liz Berragan Ros Jennings
Open Access | May 2023 Living, Caring, Learning – Reflections on the therapeutic relationship in haemophilia care Regina Butler
Open Access | Dec 2023 Living, Caring, Learning – Trust and teamwork in patient care Marcela Ganzella Sisdelli
Open Access | May 2023 Living, Caring, Learning – The treatment centre as family for a woman with severe haemophilia Dalia Bashari
Open Access | May 2023 Living, Caring, Learning – Early education, active lives and tailored treatment in haemophilia care Josipa Belev
Open Access | May 2023 Editorial – Living, Caring, Learning: How patients shape the specialist haemophilia nurse Kate Khair
Open Access | Dec 2023 Living, Caring, Learning – Addressing challenges in the transition to adult care Greta Mulders