Volume 7 (2020): Issue 1

Open Access | Jun 2020

“What more can we ask for?”: an ethnographic study of challenges and possibilities for people living with haemophilia

• Thomas Hughes
• Mikkel Brok-Kristensen
• Yosha Gargeya
• Anne Mette Worsøe Lottrup
• Ask Bo Larsen
• Ana Torres-Ortuño
• Nicki Mackett
• John Stevens

Open Access | Dec 2020

“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care

• Thomas Hughes
• Mikkel Brok-Kristensen
• Yosha Gargeya
• Anne Mette Worsøe Lottrup
• Ask Bo Larsen
• Ana Torres-Ortuño
• Nicki Mackett
• John Stevens

Open Access | Dec 2020

Navigating uncertainty: an examination of how people with haemophilia understand and cope with uncertainty in protection in an ethnographic study

• Thomas Hughes
• Mikkel Brok-Kristensen
• Yosha Gargeya
• Anne Mette Worsøe Lottrup
• Ask Bo Larsen
• Ana Torres-Ortuño
• Nicki Mackett
• John Stevens

Open Access | Dec 2020

Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe

• Thomas Hughes
• Mikkel Brok-Kristensen
• Yosha Gargeya
• Anne Mette Worsøe Lottrup
• Ask Bo Larsen
• Ana Torres-Ortuño
• Nicki Mackett
• John Stevens

Open Access | Jul 2020

Perceptions and attitudes towards gym use and physical activity in young men with haemophilia

• Luke Pembroke
• Laurence Woollard

Open Access | Jun 2020

Improving haemophilia diagnosis in developing countries: the Malian experience

• YL Diallo
• A Poudiougo
• BSI Drame
• AS Traore
• Y Cissoko
• M Doumbere
• H Kone
• Z Sountoura
• AA Diakite
• AT Sidibe
• JF Schved

Open Access | May 2020

Fiona’s FVII footprint

• Greta Mulders
• Mirjam Tuinhout

Open Access | May 2020

Professional education among haemophilia nurses: a survey of current practices

• Simon Fletcher
• Steve Chaplin
• Cathy Harrison
• Kristian Juusola
• Norma Collins

Open Access | Oct 2020

Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care

• Jennifer King
• Kara Fletcher
• Susan M. Tupper
• Kelsey Brose
• Donna Goodridge

Open Access | Dec 2020

Uncertainty to normality using ethnographic and qualitative research: a personal view

• David Page

Open Access | Nov 2020

Improvement in school absence after factor replacement in students with haemophilia in Upper Assam, India

• Anupam Dutta
• Dipjyoti Boruah
• Taniya Sarkar Dutta
• Angshuman Boruah
• Bhabani Shankar Dhal

Open Access | Dec 2020

A multi-country snapshot study of pain in people with haemophilia

• Greta Mulders
• Hanne Thykjaer
• Kate Khair
• The Journal of Haemophilia Practice

Open Access | Jul 2020

Predictors of treatment adherence in patients with chronic disease using the Multidimensional Adherence Model: unique considerations for patients with haemophilia

• Karen Strike
• Anthony Chan
• Alfonso Iorio
• Monica R. Maly
• Paul W. Stratford
• Patricia Solomon

Open Access | Aug 2020

The impact of factor infusion frequency on health-related quality of life in people with haemophilia

• Gabriel Pedra
• Pia Christoffersen
• Kate Khair
• Xin Ying Lee
• Sonia O’Hara
• Jamie O’Hara
• John Pasi

Open Access | Jun 2020

Clinical profile of children with haemophilia at the University Hospital of Brazzaville

• FO Galiba Atipo Tsiba
• OL Ngolet
• NY Ngakengni
• LC Ollandzobo Ikobo
• JV Nziengui-Mboumba
• A Elira Dokekias

Open Access | Jun 2020

Haemostatic action of a topical foam-based patch (VELSEAL-T) in haemophiliac patients with external bleeding

• Anupam Dutta
• Taniya Sarkar Dutta
• Anup Kumar Das
• Pranoy Dey

Open Access | Jun 2020

Switching factor products: nurses’ experience with NovoEight

• Debra Pollard
• Kate Khair
• Mike Holland

Open Access | Nov 2020

Do nurses have the switch factor?

• Greta Mulders
• Nanda Uitslager
• Sharon Alavian
• Anne Wareing
• Kathi Stein Oldenburg
• The Journal of Haemophilia Practice

Open Access | Jun 2020

Experience of switching to NovoEight: views of people with haemophilia

• Debra Pollard
• Kate Khair
• Mike Holland

Open Access | Jun 2020

Outcome of a combined physiotherapy and podiatry haemophilia clinic: patient perceptions and the effect on ankle bleeds and joint health

• Charlene Dodd
• Alis Trivelli
• David Stephensen
• Gillian Evans
• Miranda Foord

Open Access | Oct 2020

Knowledge, attitude and practice of health care providers toward prescribing factor replacement at federally funded haemophilia treatment centres in the United States

• M. Bloomberg
• K. Sargenton
• K. Gattamorta
• D. Anglade

Open Access | Jun 2020

Development and clinical feasibility testing of the Pain Treatment Planning Questionnaire

• Susan M Tupper
• JoAnn Nilson
• Jennifer King
• Pamela Downe
• Nancy Hodgson
• Tara Schlosser
• Kelsey Brose