Volume 7 (2020): Issue 1

Improving haemophilia diagnosis in developing countries: the Malian experience

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YL Diallo ORCID iD
A Poudiougo ORCID iD
BSI Drame ORCID iD
AS Traore ORCID iD
Y Cissoko ORCID iD
M Doumbere ORCID iD
H Kone ORCID iD
Z Sountoura ORCID iD
AA Diakite ORCID iD
AT Sidibe ORCID iD
JF Schved ORCID iD

Abstract

Abstract Introduction

Around 90% of all undiagnosed people with haemophilia (PWH) live in developing countries. In Mali, in sub-Saharan Africa, nearly 90% of potential PWH are not identified. We initiated a two-year study involving an integrated programme of training and awareness-raising with the aim of improving diagnosis and access to care for PWH, based on partnership with those who regularly interact with them.

Methodology

Our training programme focused on four regions of Mali and the district of Bamako, and included three types of health professionals from different districts and hospitals: medical doctor, nurse and laboratory technician. We also targeted traditional healers, who continue to be strongly involved in local healthcare, and provided training sessions for patients and their families on the symptoms, diagnosis, treatment and complications of haemophilia. A complementary programme of awareness-raising, including the national media, ran alongside the training sessions.

Results

Overall, the programme involved 495 participants: 213 health care professionals, 24 patients, 79 parents of patients, 126 traditional healers, and 53 media workers. A direct result was development of collaboration between these groups in identifying haemophilia, and the transfer of four patients from a traditional healer's office to hospital for diagnosis and treatment. The number of diagnosed PWH increased from 42 in 2016 to 126 in 2017.

Conclusion

The integrated haemophilia educational programme, which took into account the nature of the local environment and involved all relevant stakeholders, showed that taking a collaborative approach is a successful strategy for improving diagnosis and care for PWH in Mali. This approach could be relevant in other developing countries.

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Authors

  • YL Diallo

    ORCID iD
    yldialloml@gmail.com
    Department of Medicine, Hôpital du Mali, Bamako, Mali

  • A Poudiougo

    ORCID iD
    Laboratory Department, Gabriel Touré University Hospital, Bamako, Mali

  • BSI Drame

    ORCID iD
    Laboratory Department, Hôpital du Mali, Bamako, Mali

  • AS Traore

    ORCID iD
    Department of Medicine, Hôpital Somino Dolo, Sevare, Mali

  • Y Cissoko

    ORCID iD
    Department of Tropical Infectious Diseases, Point G Teaching Hospital, Bamako, Mali

  • M Doumbere

    ORCID iD
    Department of Medicine, Hôpital du Mali, Bamako, Mali

  • H Kone

    ORCID iD
    Laboratory Department, Hôpital du Mali, Bamako, Mali

  • Z Sountoura

    ORCID iD
    Department of Medicine, Hôpital du Mali, Bamako, Mali

  • AA Diakite

    ORCID iD
    Department of Paediatrics, Gabriel Touré University Hospital, Bamako, Mali

  • AT Sidibe

    ORCID iD
    Department of Medicine, Hôpital du Mali, Bamako, Mali

  • JF Schved

    ORCID iD
    Haemophilia Treatment Centre, University Hospital, Montpellier, France