‘I can always rely on them’: the importance of social support for boys with haemophilia

Kate Khair; Faith Gibson; Liz Meerabeau

doi:10.17225/jhp.00005

Abstract

Abstract Background

Little is known about where, and from whom children with haemophilia receive support, as there is a paucity of psychosocial research on this topic. This paper, part of a larger study of living with haemophilia, discusses the importance of social support for boys with haemophilia.

Methods

Data were collected from 30 boys aged 4-17 years with severe haemophilia A or B from a single Haemophilia Comprehensive Care Centre in the United Kingdom. Age appropriate participatory qualitative research techniques: photo-elicitation, draw and write, focus groups and individual interviews were used. All data were transcribed and the content was analysed using grounded theory.

Results

Social support was gained in many ways from individuals who were identified by the study participants as supportive. These included parents, siblings (affected themselves or not), family members (who may also be affected) and friends. Being able to share experiences with others was also described as supportive.

Conclusion

The boys in this study described many sources of social support, which changed over time as they grew older. Commentary, J Haem Pract 2014;1(1):23.

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‘I can always rely on them’: the importance of social support for boys with haemophilia

Abstract

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Authors

Kate Khair

Faith Gibson

Liz Meerabeau