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Volume 12 (2025): Issue 1

CATCH 2024 meeting summary: Collaborate & Address Treatment Challenges in Haemophilia

Abstract

Abstract

Greater treatment choice and the associated flexibility in regimens has necessitated new conversations with people with haemophilia about their personal goals. Innovations in haemophilia treatment drive the need for innovation in care service delivery. Supported by Sobi™, CATCH (Collaborate & Address Treatment Challenges in Haemophilia) is an annual, non-promotional, medical education meeting that brings together members of the haemophilia multidisciplinary team from across the UK and Ireland to discuss all aspects of haemophilia care and management. This report summarises the key issues that were explored and discussed during the CATCH 2024 meeting, including understanding the personal motivations of people with haemophilia and how these influence treatment choices and support; facilitating behaviour change to improve outcomes; reviewing the practicalities and possibilities for eliminating bleeds and new arthropathy in people with haemophilia; and developing new models of care to elevate haemophilia services.

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Authors

  • Panagiotis Christoforou

    Royal London Hospital, London, UK
  • Clive Smith

    ORCID iD
    The Haemophilia Society, UK
  • Paul McLaughlin

    ORCID iD
    Royal Free London NHS Foundation Trust, London, UK
  • Gary Benson

    ORCID iD
    Northern Ireland Haemophilia Comprehensive Care Centre and Thrombosis Unit, Belfast, Northern Ireland
  • Janet Cleary

    St James’s Hospital, Dublin, Ireland
  • Adam Jones

    ORCID iD
    University of Sunderland, Sunderland, UK
  • Guy Maissis

    ORCID iD
    Royal Free London NHS Foundation Trust, London, UK
  • Will Lester

    ORCID iD
    University Hospitals Birmingham, Birmingham, UK
  • Marie Eales

    ORCID iD
    Oxford University Hospitals, Oxford, UK
  • Cathy Harrison

    ORCID iD
    Royal Hallamshire Hospital, Sheffield, UK
  • David Stephensen

    ORCID iD
    East Kent Hospitals University NHS Foundation Trust, Canterbury, UK
  • Niamh Larkin

    St James’s Hospital, Dublin, Ireland
  • Mark McGowan

    ORCID iD
    St James’s Hospital, Dublin, Ireland
  • Mark Smith

    ORCID iD
    Sobi™, UK
  • Adam Topham

    ORCID iD
    Sobi™, UK
  • Denise Player

    ORCID iD
    Sobi™, UK
  • Kate Khair

    ORCID iD
    Haemnet Ltd, London, UK