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Volume 4 (2017): Issue 1

Empowering professionals to lead Haemophilia care

Abstract

Abstract

Members of the multi-disciplinary team involved in delivering haemophilia care face a range of significant clinical and service leadership challenges. These include the developing treatment landscape, the drive towards individualised care, an uneven age structure among haemophilia nurses and constrained budgets. Faced with such challenges, the ASPIRE programme has been established to encourage and support a new generation of haemophilia leaders who are committed to improving haemophilia care across the UK, and beyond. The programme is open to healthcare professional from multiple disciplines, and is designed to support the development of a leadership community comprising members of the haemophilia care team in a way that contrasts with hierarchical leadership and management courses more typically found in the NHS.

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References

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Authors

  • Sandra Dodgson

    Sandra@haemnet.com
    Haemnet, London, UK
  • Jenny Bryan

    jennylbryan@btinternet.com
    Medical Writer, London, UK
  • Simon Fletcher

    Lead Research Nurse, Oxford Haemophilia and Thrombosis Centre, Oxford University Hospitals NHS Foundation Trust, The Churchill Hospital, Oxford OX3 7LE, UK
  • Cathy Harrison

    Haemophilia & Thrombosis CNS/ANP, Haemophilia & Thrombosis Centre, Royal Hallamshire Hospital, Glossop Road, Sheffield S10 2JF, UK
  • Clare Ibbs

    Paediatric Haemophilia Nurse Specialist, Arthur Bloom Haemophilia Centre, University Hospital of Wales, Heath Park, Cardiff CF14 4XW, UK
  • April Jones

    Nurse Specialist Haemophilia, Newcastle upon Tyne Hospitals NHS Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP, UK
  • Paul McLaughlin

    Clinical Specialist Physiotherapist in Haemophilia, Royal Free London NHS Foundation Trust, Katharine Dormandy Haemophilia Centre and Thrombosis Unit, Pond Street, London NW3 2QG, UK
  • Gráinne O’Brien

    Clinical Psychologist, Haemophilia and Thrombosis Centre, Royal Infirmary of Edinburgh, Little France Crescent, Edinburgh EH16 4SA, UK
  • Sharon Varney

    Space for Learning, www.spaceforlearning.com, London, UK
  • Anne Wareing

    Clinical Nurse Specialist, Haematology, St George's University Hospitals NHS Foundation Trust, London SW17 0Q, UK
  • Pamela Wick

    Sister, Haemophilia & Thrombosis Centre, Glasgow Royal Infirmary, 84 Castle Street, Glasgow G4 0SF, UK