Perceived confidence for injury self‑management increases for young men with mild haemophilia with the use of the mobile app HIRT?

Joann Nilson; Kathy Mulder; Candice L. Schachter; Kristy Wittmeier; Richard Lomotey; Catherine M. Arnold; Sarah Oosman

doi:10.17225/jhp00102

Abstract

Abstract Background

Young men with mild haemophilia have unique challenges pertaining to bleed management. They may not always identify musculoskeletal injury requiring medical attention as they do not bleed frequently, potentially resulting in significant health consequences. In response to these challenges, a team of clinicians, researchers and young men with mild haemophilia developed a self-assessment pathway which was converted into a mobile app.

Aim

This study examined the influence of the mobile app, HIRT? (Hemophilia Injury Recognition Tool) on perceived injury self-management in young men with mild haemophilia in Canada.

Methods

We used a mixed methods design. The quantitative data, through a self-report questionnaire, evaluated perceived injury self-management strategies and participant confidence levels. Non-parametric Wilcoxon signed-rank test and McNemar chi-square test were used to determine association between perceived self-management strategies when using and not using the app, with significant levels set at p<0.05. Qualitative data was created using interpretive description and inductive content analysis of recorded and transcribed interviews.

Results

12 young men, aged 18-35 years, participated. Perceived confidence levels significantly increased (p=0.004) with the use of the app. Five qualitative themes were identified: accessibility, credibility, the benefit of alarms, confidence and usefulness.

Conclusion

This study provides promising evidence to support the feasibility and use of HIRT? as an injury self-management tool for young men with mild haemophilia. Future research should prospectively investigate the effect of the app on injury selfmanagement confidence.

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Authors

Joann Nilson

Joann.Nilson@saskatoonhealthregion.ca

Saskatchewan Bleeding Disorders Program, Saskatoon, Saskatchewan, Canada
Kathy Mulder

Physiotherapy-Child Health Program; Children’s Hospital, Winnipeg, Manitoba, Canada
Candice L. Schachter

School of Physical Therapy, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
Kristy Wittmeier

Department of Physiotherapy, Health Sciences Centre Winnipeg Department of Pediatrics and Child Health, Max Rady College of Medicine, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada
Richard Lomotey

The Pennsylvania State University, Information Sciences and Technology, Monaca, PA, USA
Catherine M. Arnold

School of Physical Therapy, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
Sarah Oosman

School of Physical Therapy Researcher, Saskatchewan Population Health and Evaluation Research Unit (SPHERU) University of Saskatchewan, Saskatoon, Canada