US haemophilia centre nurses and advanced practice providers: Demographics, roles/responsibilities, training, educational barriers and employment benefits

Michelle L. Witkop; Christine Guelcher; Margaret Hall; Jennifer Maahs

doi:10.17225/jhp00101

Abstract

Abstract Introduction

As the focus on personalised treatment is refined, more products are brought to market and the life expectancy of persons with haemophilia increases, there will be an expanded need of experienced and expert healthcare providers to ensure optimal patient outcomes.

Aim

This survey describes the demographics, roles/ responsibilities, practice patterns, educational opportunities/barriers and employment benefits of nurses and advanced practices providers (APPs), including advanced practice registered nurses (APRNs) and physician assistants (PAs) employed by haemophilia treatment centres (HTCs) across the United States.

Methods

This one-time convenience online survey was approved by the Munson Medical Center Institutional Review Board. A survey of this type had never been attempted in the HTC nursing community; therefore. there was no opportunity to utilise a previous tool. Data was analysed using statistical tools through SurveyMonkey.

Results

Gaps were identified in provider age distribution, research opportunities, and standardised educational opportunities for APPs. An aging but highly educated HTC nursing population is revealed: over 50% of respondents were over the age of 50; the majority held at least a baccalaureate degree and almost half had national board certification; most were experienced in healthcare but newer to the field of bleeding disorders.

Conclusion

Development of an APP fellowship program would standardise the care and treatment of those with bleeding and clotting disorders across the United States. This fellowship should include a didactic portion, advocacy within the community, mentorship with experienced APPs and regular webinar-based case studies to review current trends in care. This survey is a call to action to begin standardised education programs for the advanced practice role.

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Authors

Michelle L. Witkop

Mwitkop@mhc.net

Northern Regional Bleeding Disorders Center at Munson Medical Center, 1105 Sixth Street, Traverse City, MI 49684, Michigan, USA
Christine Guelcher

Cguelche@childrensnational.org

Center for Cancer and Blood Disorders, Children’s National Health System, 111 Michigan Avenue, NW, Washington DC, USA
Margaret Hall

Mhall4@mhc.net

Northern Regional Bleeding Disorders Center at Munson Medical Center, 1105 Sixth Street, Traverse City, MI 49684, Michigan, USA
Jennifer Maahs

jmaahs@ihtc.org

Indiana Hemophilia & Thrombosis Treatment Center, 8326 Naab Road, Indianapolis, IN 46260, USA