Open Access | Volume 13 (2026): Issue 1 | Pages 1–2 | DOI: 10.17225/bdcp-2026-0001
Kate Khair1, Maria E Santaella2
1 Haemnet Ltd, London, UK; 2 National Bleeding Disorders Foundation, New York, US
This is a joint editorial by the former and current Editors-in-Chief of Bleeding Disorders: Care & Practice, Dr Kate Khair and Dr Maria E Santaella. It discusses the origins of The Journal of Haemophilia Practice, its purpose, and the reason for changing the title of the journal to Bleeding Disorders: Care & Practice. It also looks to the journal’s future.
When we started The Journal of Haemophilia Practice in 2013, I was asked ‘Why?’ Why start another journal in the ‘haemophilia space’ when there were many there already?
For me the ‘why’ was multifactorial. Colleagues and peers were telling me they couldn’t get their work published or recognised because it wasn’t innovative, was too small a case series, or was qualitative and didn’t have statistical power. At the same time, I saw how nurses and allied health professionals really learned through sharing their experiences of unusual cases. Often presented as case studies in posters at international meetings, these resonated – and prompted people to contact each other, often years later, when they saw similar cases.
My answer to ‘Why?’ is summed up in another question: how could we capture all of these experiences?
And so, The Journal of Haemophilia Practice was born.
During the years between 2013 and 2025, the journal has grown, publishing case studies, mini-series and in-depth qualitative research, alongside quantitative studies, systematic reviews, meeting reports, and papers on new models of care delivery and patient experience. We published ‘Living, Caring, Learning’, a special series focused on bleeding disorder nurses and how care can be shaped by memorable patients and their families. And we now have a global reach, enabling publication of data from countries where access to treatment is only just becoming achievable, and where sharing experiences and practice remain as valuable as ever.
As the journal has changed, so has the world of haemophilia medicine. There is now much more emphasis on treatment beyond haemophilia. Rare bleeding disorders are starting to benefit from years of haemophilia treatment innovation, with monoclonal antibody therapy and rebalancing agents offering innovation and hope for all those living with them. Of course, these conditions affect both females and males. The increase in awareness around the impact of bleeding for women, including and beyond heavy menstrual bleeding, signals further progress. However, there is still much to do in terms of care and innovation for all. Recognising that the journal exists to publish research findings across all bleeding disorders is the core reason for renaming it Bleeding Disorders: Care & Practice.
I leave the editorship of the newly named journal at an exciting time for patients, their caregivers and treaters. In the very capable hands of new Editor-in-Chief Maria E. Santaella, the journal will continue to raise the profile of all people living with a bleeding disorder and those who care for them.
Kate Khair
It is an honour to assume the role of Editor-in-Chief of Bleeding Disorders: Care & Practice (BDCP). Since its inception in 2013, under Dr Khair’s visionary leadership, the journal has served as a trusted forum for clinically relevant, practice-informed scholarship in bleeding disorders. I am deeply grateful for her vision, dedication and enduring contributions to the field.
The journal’s new name reflects both continuity and growth. Our core mission remains unchanged: to publish rigorous, high-quality research, reviews, and perspectives that inform care. At the same time, we now explicitly embrace a broader landscape – one that encompasses the full spectrum of bleeding disorders, interdisciplinary practice, and the diverse stakeholders who constitute our community.
Central to this next chapter is meaningful engagement with the Lived Experience Expert (LEE) community – that is, persons directly affected by these conditions and their family members. Research is most impactful when informed and shaped by those it seeks to serve. Accordingly, BDCP will actively promote the integration of patient, caregiver, and community perspectives across research design, authorship, and interpretation. To further enhance accessibility, all publications will include plain-language summaries so that findings are understandable and actionable for clinicians, researchers, and the LEE community alike.
I look forward to working closely with authors, reviewers, and editorial board members as we build on BDCP’s strong foundation. Together, we will advance scholarship that is rigorous, relevant, and inclusive – strengthening the bridge between research, interdisciplinary clinical practice, and lived experience, and positioning the journal as a leading forum for practice-informed innovation in bleeding disorders care.
Maria E Santaella
Kate Khair is an employee and shareholder of Haemnet Ltd.
Maria E Santaella is an employee of the National Bleeding Disorders Foundation and Editor-in-Chief of Bleeding Disorders: Care & Practice.
Kate Khair – https://orcid.org/0000-0003-2001-5958
Maria E Santaella – https://orcid.org/0000-0003-2029-677X
Khair K, Santaella ME. Editorial: A new era for our journal. Bleeding Dis Care Pract 2026; 13(1): 1–2. https://doi.org/10.17225/bdcp-2026-0001
This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs 4.0 International License (https://creativecommons.org/licenses/by-nc-nd/4.0/deed.en) which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial, and no modifications or adaptations are made. Copyright is retained by the authors.
Authors ©2026: Kate Khair, Maria E Santaella. Published by Haemnet Ltd. eISSN: 2978-4204. Journal Contact: publishing@haemnet.com